'Global Ichthyosis Syndrome Network Foundation' respects the privacy of all visitors to the Global Ichthyosis Syndrome Network Foundation web site and takes the utmost care to ensure that any personal information that you provide to the Global Ichthyosis Syndrome Network Foundation will be kept confidential. By using this site, you accept the terms of this policy. Any changes to this policy will be published on the Global Ichthyosis Syndrome Network Foundation web site.

'Global Ichthyosis Syndrome Network Foundation' will only use the personal information that you provide, to help make your use of the Global Ichthyosis Syndrome Network Foundation site and the processing of any donations that you place, as easy and efficient as possible. Any other use will be made solely after obtaining your express permission. 'Global Ichthyosis Syndrome Network Foundation' will not sell your personal information to a third party and will only pass your personal information to a third party if this is necessary for the processing or delivery of your order.

'Global Ichthyosis Syndrome Network Foundation' uses the data provided by members and donors for the following services:

• When a donor places an order, we require the donor's name, email address and payment details in order to process the donation and to keep the donor informed as to the status of the donation.
• In order to ensure that donating at 'Global Ichthyosis Syndrome Network Foundation' is as easy and efficient as possible, with the donor's permission, we store details relating to the donation and the use of our services. This enables us to personalise the web site to the specific preference of each donor and make suggestions that are relevant to the donor.
• With the donor's permission, we use the donor's details to inform them of relevant developments on the web site and special offers and promotions. A donor can have this facility turned off by sending an email to the This email address is being protected from spambots. You need JavaScript enabled to view it..
• If you create a personal account with the 'Global Ichthyosis Syndrome Network Foundation', all details will be stored in a secure section of the web site. The details that are stored in a personal account with the 'Global Ichthyosis Syndrome Network Foundation' include the donor's name, email address and payment details, so that this data does not need to be re-entered on a repeat visit to the web site.
• Details pertaining to the use of our web site and the feedback that we obtain from our donors help us to further develop and improve the web site.

'Global Ichthyosis Syndrome Network Foundation' will not sell your personal information.
The 'Global Ichthyosis Syndrome Network Foundation' will not sell your personal information to a third party and will only pass your personal information to a third party if this is necessary for the processing or delivery of your order or donation. Our employees and partners are required to respect the confidentiality of your personal details.

Your personal details are safe with the 'Global Ichthyosis Syndrome Network Foundation'.
Because we respect the trust that you have placed in us, we will exercise extreme care with processing and storing your personal details. When you place a donation or access your 'Global Ichthyosis Syndrome Network Foundation' account, be assured that you will be using the latest technology, such as “the Secure Socket Layer”, to ensure optimal security. For technical and operational reasons, it can be necessary to move your data to servers operated by partners of the 'Global Ichthyosis Syndrome Network Foundation'. Your personal details shall however, remain protected and confidential at all times.

Data breach.
If you suspect that there is a data breach, then we ask that you to report this as soon as possible via our This email address is being protected from spambots. You need JavaScript enabled to view it..

Should you have any questions regarding the 'Global Ichthyosis Syndrome Network Foundation' privacy policy, please send an email to the This email address is being protected from spambots. You need JavaScript enabled to view it.. Our employees will be happy to assist you if you require further information or need help to change your details or settings.

Any changes to our privacy policy will be reflected in the most recent copy of this document on our web site.