Global Ichthyosis Syndrome Network Foundation

Information about a Public Benefit Organisation

  • harlekijn ichthyosis
  • Congenitale ichthyosiforme erythrodermie
  • Trichothiodystrofie
  • Sjgren-Larsson
  • Sinterklaas
  • Ichthyosis Vulgaris

Ichthyosis: living with a congenital skin condition.

Ichthyosis. In the Pocket Dictionary of medicine it is described as: 'fish scales disease, persistent congenital skin condition by scale formation'.

In Ichthyosis is the balance between the production of new skin cells and the molting of the skin is disrupted. Ichthosis is hereditary or caused by a spontaneous genetic mutation. The skin can create too many new skin cells or cells cannot peel easily. That leads to a disruption in the normal skin process of creation and breakdown. This gives scales on the skin.

As you can read on this website, there are several conditions that fall under this umbrella term. This site is an information resource for anyone who want to be informed about this (yet) not to cure disease.

Latest News:

New GISN-website
Saturday, 02 December 2017
On 1st of December 2017, the new website of Global Ichthyosis Syndrome Network (GISN) has gone online. On this new site we want to combine all information that we have available at this moment. Also, a complete new member system has been developed...



This website is made possible by donations to the Global Ichthyosis Syndrome Network Foundation.

The patients that we represent can use your donation very well. Amounts that have been granted exclusively benefit the patients. Board members of the Foundation do not charge any costs. Donate via this website by clicking on the donate button below or click on 'Donate' at the top in the main menu.

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